Thank you for visiting our page! Our beautiful daughter Kiera has Prader-Willi Syndrome (PWS) and we are taking one SMALL Step to help to raise funds for critical research to help eliminate the challenges of PWS.
Prader-Willi Syndrome is a rare genetic disorder which affects the part of the brain (hypothalamus) to constantly feel hungry, while never EVER feeling full. The urge for hunger is so strong, it leads to constant food seeking (hyperphagia) and high anxiety. Other symptoms may include, growth hormone deficiency/short stature, small hands and feet, scoliosis, sleep disturbances with excessive daytime sleepiness, high pain threshold, speech apraxia/dyspraxia, and infertility. Behavioral difficulties may include obsessive-compulsive symptoms, skin picking, and difficulty controlling emotions. Adults with PWS are at increased risk for mental illness. PWS is a spectrum disorder and symptoms vary in severity and occurrence among individuals. Kiera already exhibits some of these symptoms, which is why we are taking One SMALL step.
Kiera is an incredible little girl who has a fiercely strong spirit! She pushes through her limitations and works so hard to keep up with her peers. We have hope she will one day lead a life of independance and to live life FULL! We fundraise for Kiera and all those affected, to alleviate the struggles of pws.
Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research Canada. You can learn more about PWS and the research that is underway at http://www.fpwr.ca/research/.
Please join us and donate now!