Brampton, Ontario

Ellie and Friends

We are taking one SMALL Step to help to raise funds for critical research to help eliminate the challenges Prader-Willi Syndrome (PWS) creates for our children.

Prader-Willi Syndrome currently has NO CURE. Some of the difficulties include:

- Insatiable hunger (unable to ever feel full) [hyperphagia]

- Scoliosis ( "S" spine)

- Mixed Apneas with Oxygen support (difficulty breathing)

- Inability to regulate body temperature (overheats)

- Low muscle tone (hypotonia)

- Seizures

- Delayed or impaired cognitive function

Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research Canada. You can learn more about PWS and the research that is underway at http://www.fpwr.ca/research/.

 

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