Thank you for visiting my page! My son Emanuel has Prader-Willi Syndrome (PWS) and I am taking one SMALL Step to help to raise funds for critical research to help eliminate the challenges of PWS.
Emanuel, was diagnosed with PWS when he was just a few months old. The diagnosis was devastating! PWS wasn’t something we had ever heard of and we were suddenly forced to learn everything there was to know. PWS is a complex genetic disorder that occurs approximately in 1 out of every 15,000 births. PWS is a life threatening medical disorder affecting: hormones, muscle strength, appetite, behavior, cognition, pain tolerance, sleep patterns, along with many other medical complications. Our objective is to raise money for the Prader-Willi Research Foundation which will help him eliminate these challenges on a daily basis. By helping us to raise money, more medical research will be conducted regarding the main challenges faced by individuals effected by PWS. We hope with the medical discoveries made, that Emanuel will have a chance at living a more fulfilling life.
You can learn more about PWS and the research that is underway at http://www.fpwr.ca/research/.
Please join me and donate now!