Dear Family and Friends:
My nephew, Zachary, has Prader-Willi Syndrome, PWS, which is an incurable genetic disorder that is characterized by constant hunger, low metabolism, low muscle tone, high pain threshold, obsessive compulsive behavior and other serious mental and physical health issues. PWS is difficult to diagnose, treat and control.
The Romano Family will be taking one SMALL Step to help to raise funds for critical research to help eliminate these challenges.
Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research Canada. You can learn more about PWS and the research that is underway at http://www.fpwr.ca/research/.
Zachary's health and happiness means so much to our family.
Please join me and donate now!
Carmela, Bernie, Saveria, Jack and Gianluca