Dear Family and Friends:
My nephew, Zachary, has Prader-Willi Syndrome (PWS) which is an incurable genetic disorder that is characterized by constant hunger, low metabolism, low muscle tone, obsessive compulsive behavior and other serious mental and physical health issues.
PWS is difficult to diagnose, treat and control.
The Romano Family will be participating in the One Small Step Walk on May 26 to raise money for critical research to help eliminate these challenges.
Zachary's health and happiness means so much to our family.
Please join me and donate now!
Peace and Love,
You can learn more about PWS and the research that is underway at http://www.fpwr.ca/research/.