Our 3rd child, Brooke, was born in August of 2011. She seemed healthy at first, but we quickly realized that there was something wrong. She was floppy, she didn't cry, didn't move much and couldn't feed. We lived in the neonatal ICU for 2 weeks before she was able to eat without a tube and we were sent home. It was another 5 agonizing months until we got a call from our geneticist with a diagnosis of Prader-Willi Syndrome. The next few years proved difficult as we had to reinvent our life as we knew it for our adorable special needs little girl. One who brought such light and laughter to our lives! We wanted to fight for a cure and didn't know how until we found out about the One Small Step Walks for PWS.
Moving Forward, our family and friends offered endless support and came together to help us form our first One Small Step Walk in September of 2012. Each and every year they have shown such amazing love and support for Brooke, and like us, believe in the research. Believe that it is that research that will help find treatments for our children living with Prader-Willi Syndrome to one day live independently without the fear and impact of always being hungry.
Funds raised are used to advance PWS research through the Foundation for Prader-Willi Research Canada. You can learn more about PWS and the research that is underway at http://www.fpwr.ca/research/.
Please join us and donate now!