Our sweet daughter Kailtyn was diagnosed at 8 weeks of age with a genetic disorder called Prader-Willi Syndrome ( PWS). Kaitlyn will face many challenges in her life including physical restrictions from low muscle tone , speech and cognitive delays and an insatiable hunger that needs constant supervision or can lead to excessive eating and life – threatening obesity. Research has paved the way for many exciting treatments to help Kaitlyn but we have only scratched the surface
Kaitlyn works hard every day to do the things we do naturally. She tries so hard to talk, write and do basic skills a grade seven student needs to do but with her fine motor issues and apraxia of speech she continually runs into walls. We believe that with more focused research, answers can be found which will allow Kailtyn and other children with PWS to become and do all that they can.
We are taking one SMALL Step to help to raise funds for critical research to help eliminate the challenges of PWS.
This video illistrates her challenges https://www.youtube.com/watch?v=Sh-o3dBkmUI
Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research Canada. You can learn more about PWS and the research that is underway at http://www.fpwr.ca/research/.
Please join me and donate now!